Bethel and I traveled from Washington, DC to Palo Alto, CA on the first of November for her first pre-op test scheduled early morning of November 2. Some of the testing that Dr. Steinberg ordered have already been done previously back in Maryland.
Her Pre-op schedule is as follow for Week 1:
Day 1: Cerebral Angiogram
Day 2: MRI Brain with and without contrast and Nova Sequencing
Day 3: Xenon CT Scan
Week 2:
Day 4: TCD-Trans Cranial Dopler
Meet Dr. Steinberg
Surgery Anesthesia Visit
Day 5: Neuropsychological Testing
Currently (Nov. 5), Bethel had completed the Xenon CT Scan which is part of Stanford's study to quantify collateral perfusion in Moyamoya patients. So far the testings have gone well. Bethel did experience her spells these past 3 days, but it was particularly worse during the Xenon CT which takes approx. 2 hours to complete. She only got two thirds of the way through when the involuntary movements began. The test requires the patient to remain perfectly still for the duration of the test, so they had to stop and admit her in to the ER. Good thing the test took place in the hospital. She's been stuck and poke with IV's and needles so many times I feel bad for her. Otherwise, she's been in good spirits.
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