Bethel was discharged from the hospital yesterday (11/19/11). She was doing very well and was able to walk over to Lucile Packard Children's Hospital to follow up on 6 yr old boy who underwent the same procedure. His family also brought him to see Dr. Steinberg. He also seems to be doing very well.
Around 12:30 pm today Bethel had a seizure in the apartment. This time I knew it was real because I've witnesses a former college roommate seize in front of me. Her body suddenly stiffened up while sitting on the sofa, her eyes rolled back and her mouth was wide open. Within seconds of me realizing what was going on she began to convulse and foam at the mouth. She was resting her head on the lastest incision side, so I moved her onto the ground and laid her on her right side. She became completely unconscious at this point and I could not get her to respond. I was so scared and felt so helpless. I called 911 and the paramedics arrived within 10 mins of the call. She was beginning to come out of the seizure at this point.
Upon arrival to the Stanford ER, Bethel was conscious and could say her name and age. She was very disoriented and she had difficulty with words. The resident neurosurgeon on duty had participated in her first surgery and recognized her. The doctor ordered a CT scan and it appeared normal. They did see somethings they want to discuss with Dr. Steinberg, but I was told seizures are not uncommon after brain surgery. It may take time for the brain to adjust to the increased blood flow that had been lacking for a long time.
She's spending the night for observation. Thanks to Misono (Bethel's former college roommate) and her husband Dan for visiting and feeding us. We had plans to have lunch with them, but it unfortunately turned into a hospital visit.
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